My daughter Rachel has something like 45% hearing loss. We figure it’s a residual effect from her seizures as a child, but we don’t know for sure when it started. Unlike a lot of people with moderate hearing loss, she doesn’t shout. (I have a brother with much milder hearing problems who speaks much, much louder.) She’s louder than her siblings and tends to get really loud under stress, but that’s the sort of behavior that’s easily attributed to personality. Her problem is so difficult to observe that it took us a while to realize that there was a problem.
What we did notice was that she was incredibly stressed. She’s an extrovert and loves interacting with people, but unlike most extroverts she’d have this strained, almost panicked expression on her face when she was in a group. She loved meeting people and talking in groups, but at the same time it’s pretty much a worst-case scenario for her particular problem. In a one-on-one conversation she listens carefully, reads lips, and extrapolates missed words based on context. This is obviously difficult and requires a lot of brain power, which is probably why she’d be so stressed.
In a group, there’s a lot more room noise and you can’t watch everyone’s lips at once, which means she often couldn’t keep up with what everyone was saying. Before she was diagnosed, we had no way of knowing this stress stemmed from hearing loss. We just sort of assumed that she was a naturally stressed kid. We had no idea how hard she was struggling to understand in social gatherings, and as far as she knew this was how everyone conversed.
Continue reading 〉〉 “Can You Hear Me Now?”
T w e n t y S i d e d
