T w e n t y S i d e d

Back in October of last year this question arrived in the Diecast mailbag. A lot of people have asked me this same question over the years and so I figured it was probably worth answering. On the other hand it felt a little too long, involved, and focused-on-me for the podcast.

Dear Shamus,

As an autistic person myself, I couldn’t help but notice that the experiences you describe both on the diecast and in your life story series on the blog (especially regarding sensory rocessing disorder, such as your difficulty processing two auditory streams at once) are very similar to what is experienced by both myself and my neurosiblings in the autistic community. Have you ever considered whether you might be on the spectrum yourself, or possibly been evaluated as a child? (Autistic kids who learn to hide their symptoms to avoid bullying frequently slip through diagnosis.)

Edith

Edith is probably referring to the early chapters of the Autoblography. I won’t try to summarize all of that personal history here. If you’re curious, you’ll have to read the series. I certainly exhibited a lot of odd behaviors when I was young. And if I’m being honest, I’m still pretty eccentric at 45. In fact, there’s a lot of personal strangeness that I left out of the Autoblography because it would have taken too long to explain or would have been too personally embarrassing.

I began writing a response to Edith’s question months ago, but then forgot all about it until the topic popped up again on Twitter when someone said:

"Autists don't have a theory of mind"
It's not like we *can't*. We just didn't get one for free out of the factory. We had to roll our own.

— Mr Bones (@mr_bones_rises) July 20, 2017

To which I responded:

Never been diagnosed with autism, but this speaks to me on a deep level.

I was 19 before I began to understand what everyone else did at 6. https://t.co/pEKMC3gyXo

— Shamus Young (@shamusyoung) July 21, 2017

On one hand, I know it’s really annoying when people go around diagnosing themselves with complex things that they don’t totally understand. On the other hand, when autistic people describe their struggles it sounds pretty familiar. So while I’m reluctant to go around claiming I was / am autistic, I can say fairly definitively that I had some sort of profound neurological dysfunction that greatly inhibited my social development. These days I would expect a kid behaving the way I did to end up diagnosed with something. My malfunctions were off-putting to the adults in my life and prevented me from forming stable relationships.

Whatever my problem is, I couldn’t have been diagnosed with autism because autism itself is a new-ish idea. Our current understanding of it didn’t solidify among academics until the 1970’s. Before this, it was lumped into schizophrenia, which seemed to be our catch-all term for “This person is strange and we don’t know why”. This was long before the internet, which means it took a couple of decades for that understanding to work its way out into the general public where it would be understood by parents and school systems. I didn’t hear the word “autism” until the 90’s or so, long after I’d become an adult.

I knew I was different, but I didn’t understand how I was different or where my problems came from. Just one example of countless memories in my life:

Continue reading ⟩⟩ “Autism?”

Shamus Young is a programmer, an author, and nearly a composer. He works on this site full time. If you'd like to support him, you can do so via Patreon or PayPal.